We're doing great. We have felt the love of God through everyone around us and we are truly blessed. Our day to day life isn't significantly different. We have a slightly longer morning and bed time routine and some medicine during the day, that's all. Rather than focusing on worst case scenarios we will remain optimistic and grateful. Life is wonderful and we're going to enjoy it. We're also going to use our new outlook as an opportunity to learn all we can and to spread awareness.
Join Us
Part of what we're doing is participating the Great Strides Walk at Wheeler Farm Sat. May 16th 9:00 am. This is a great opportunity to get together support each other and have a fun little walk with the kids. Together with Clare's cousin Elliot we're forming a group called Elliot's Angels and Clare's Crusaders. It's FREE of charge. Donations are accepted but not nessasary. If you can join us registration is online. Here's a link: http://www.cff.org/Great_Strides/ChrysiD
We'd love to have as many people as we can there. We're also makeing t-shirts for those who would like them. Let me know if you're intrested in one.
Clare's Aunt Amanda has put together a really great video about her and Cystic Fibrosis. There's a short clip about Clare (top) and there's a short clip (about 4 min) about her and Elliot combined (below). It's a great way to learn a little more about Clare, our family and CF. Please take a moment to watch one.
Thanks to all for your love and support and prayers. You strengthen us.
Elliot and Clare
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